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Mar 27 2007 05:51 pm
Hi, my name is Tish. I am 42 yrs old and was diagnosed with MS 15 yrs ago. I was rediagnosed 3.5 yrs ago with RRMS after being symptom free for about 12 yrs. I also have a brother who suffers from this as well. He was diagnosed about 1 year after me. I am taking my Copaxone shots daily and my Amantadine daily for fatigue,,,ugh!! Right now fatigue and aches and pains are on my everyday plate. Some days are crap and others are great. I am in Saint John as well and would love to talk to others about every day goings on. I am presently a stay at home mom to 3 kids but in the fall I am going back to school...I want to learn to get my stress into check before too long. I am going to need it!! Anyways, i have a tendency to babble on. Its a great site Tracey...I love how your initials are TLC...AWESOME!!
Dec 29 2006 05:28 pm
Hi, my name is Deanna. I am 33 years old and I was diagnosed with a progressive form of MS on September 12, 2006 following an MRI. I will never forget that day as long as I live. I have been suffering from what I now know are MS symptoms for at least five years. I only told my doctor about it from time to time as I was embarrassed at the thought of trying to explain symptoms such as how only my left side of my body was weak or how it felt like I was walking in cement blocks when it is really hot outside. For some strange reason, I just assumed I had some strange arthritis so as I type this I am still in shock that it's really MS. It is so relieving to see other people post messages on their symptoms and their experiences. I find it helps me try to deal with this very scary disease and just carry on with life. Thank you so much for this site!
Sep 23 2006 07:31 am
Hello, my name is Amanda, i live in Ontario. I was diagnosed at 19 with relapsing remitting. Life was hard at first but you do get through it. It is really hard to beleive that it has been almost 6 years. People don't think your sick but you feel like crap everyday and i lost like 20lbs on the meds. Been off meds for 3 years and started my family with a beautiful baby girl. Ms does stop you from doing certain things but you just learn to deal. Life is quite uncertain but you live your life to the fullest. You really need to keep doing the things you love to do and not give up. It takes a while but since diagnosed i would not wish this upon any of my other family members i am a strong person and i think that is partly why i was the chosen one. No one in my family has ms but me so it has been an adjustment for all of us.
Sep 3 2006 04:51 am
Hello! I was only diagnosed in 2003, but I have a progressive kind, so it seems likethe odds are against me - I read that 90% of people who have what I do - have it with only temborary symptoms, and then it goes into remission until they are much, much older. But that's the majority - I was told that the kind I have will put me in a wheelchair, but it was supposed to happen a few years ago! But, right now, I just use a walker. I seem to be really good at beating the odds, and taking an unextebted way to go.
Right now, I have a home in The Seely Lodge - it's a special care home, and I am the youngest person here! They all call me "The young and smart one" so hey, I feel like I am wanted!
I just love talking to people either on the phone, or on this site, and I plan to start my own website someday soon!
Tineke
It is my real name, and it's a name from Amsterdam, which is also where the very first diagnosed case of MS was!
Aug 24 2006 07:04 am
HI I'M PAUL AND SUFFER RRMS.I WAS DIAGNOSED 10 YEARS AGO,WHEN I WAS 25..I TAKE BETA-INTERFERON AND HAVE BEEN THE 6 YEARS..AT THE PRESENT MY EYES ARE GIVING ME TROUBLE AND I'M NOT ALLOWED THE STEROIDS AS IT'S BEEN ONLY 8 WEEKS SINCE I LAST HAD THEM BUT,MY SPIRIT IS STRONG AND I WON'T LET THIS GET ME DOWN AS IT HAS BEFORE..ALL THE BEST....PAUL
May 31 2006 11:25 am
My name is Kristi Murphy. I was diagnosed with MS March 18, 2004 - a month before my 25th birthday. Things have definitely been up and down, but things are working out. When I was diagnosed, I had a few people to lean on, and that was what really helped. I met my fiance November 2004 - and telling him was the hardest thing I have ever done. but he is the most amazing man in the world, and told me that my having MS didn't change anything (except he is a little more protective of me than before). We are getting married September 30, 2006. I suppose that I have done a lot of good things with my life, I just hope that I can keep going on them. I just graduated from university with my second degree (I am a Social Worker now!!), the first one is a Psychology degree. I just got my first job in the field, as a Probation Officer. I love the work, I just need to remember to try and keep my stress under control.
As far as drugs go, I was originally taking Copaxone, but apparently I was allergic to it, and I have scars on my stomach to remind me all the time. I am now taking Rebif, and things are going great! I haven't needed any other medication for any other reason - and that is GREAT news. I am a bit tired, but I think that is as much for the lack of sleep as it is for the MS.
Your website is great! And you wedding pics are beautiful!
Kristi
May 3 2006 09:40 am
OK, I'll go first. In April 2004 I went numb from the waist down - couldn't even tell if I had to use the washroom. I had 5 MRIs done - lower back, mid back, mid back with axial angles, mid back with dyes for contrast, then finally my neck and my brain.
I wish they had done my brain first. I have multiple lesions and scars in the brain - MS. What a scary adventure as I did not really know what MS was when I was diagnosed.
Much research was done through the Internet to learn as much as possible about the MonSter. I've been taking Rebif since January 2005 and hope it is working to slow down the progression. I take Alertec (Provigil) to help with the fatigue.
I think the worst thing is not knowing what each day will bring. I've been doing fine and hope it continues this way!
Tracey Lynn Caissie (TLC)
